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Advocacy

Chair

                          
Jerome Engel, Jr., M.D., Ph.D.
Professor of Neurology & Neurobiology            
UCLA School of Medicine                          
Reed Neurological Research Ctr                   
710 Westwood Plz, Box 951769           
Dept of Neurology, Rm 1250             
Los Angeles, CA  90024
(P)310.825.5745  
(F)310.206.8461      
engel@ucla.edu 

Composed of a Chair-person appointed by the President and a group with interest in AES and other epilepsy research funding.  Charges:

• Establish a conduit for disseminating information to our sister lay organizations (e.g., CURE, EFA, Epilepsy Project, etc.) as well as to policy makers involved with Medicare/Medicaid funding, NIH funding, etc.
• Assist organizations in their advocacy efforts by identifying volunteers (clinicians, scientists) for their advocacy efforts.
• Develop long-term strategies in using the resources and expertise of AES in advocating for patient services and epilepsy research.

Advocacy Committee Members

Engel J.(Chair) 2010
Chung S. 2009
Hargis E. 2010
Heck C. 2009
Helmers S. 2010
Jensen F. 2008
Liow K. 2009
Shafer P. 2009
Shore C. 2009
Smith B. 2009
Spanaki-Varelas M. 2009
Stringer J. 2009
Wilcox, K. 2009
Whittemore V. 2010
Axelrod S.  (Ex-Officio ) 
Carlson, K. (Ex-Officio)                           
Finucane A. (Ex-Officio )
Riker E. (Ex-Officio )
Spencer D.  (Ex-Officio)
Tubby C.  (Staff Liaison)

Goals/Strategies

• Define the role that AES will play
• Define operational principles and infrastructure
• Develop fact based compelling argument for increasing research funding (A succinct  messae summarzing the achievements and goals of epilepsy research - to be updated annually) in partnership with the Funding Success Task Force and the Lennox Trust Fund.
• Devleop a position and course of action for Continuity of Supply Task Force efforts (in partnership with that Task Force)
• Develop and create the elements of Operation Giveback (in partnership with that Task Force)