Useful Links for Patients
The links below are to non-profit organizations and are provided as a service to AES members and their patients. AES is not responsible for the content provided on these websites.
A pediatric healthcare site with information on epilepsy: AboutKidsHealth.ca
The Anita Kaufmann Foundation: www.AKFUS.org
American Association for Intellectual and Developmental Disabilities: www.aaidd.org
Canine Epilepsy Network: http://www.canine-epilepsy.net/
ARCH National Respite Locator Service: www.respitelocator.org
ARCH National Respite Network and Resource Center: http://archrespite.org/
Canine Epilepsy Resources: http://www.canine-epilepsy.com/Resources.html
Center for Disease Control and Prevention - Epilepsy Resources: http://www.cdc.gov/epilepsy/resources.htm
Citizens United for Research in Epilepsy (CURE): www.CUREepilepsy.org|
Danny Did Foundation: http://www.dannydid.org/
Dravet Foundation: www.dravetfoundation.org
Epilepsy Advocate: http://www.epilepsyadvocate.com/resources/epilepsy-programs.aspx
Epilepsy Foundation (EF) and local EF affiliates: www.efa.org
Epilepsy Life Links: www.epilepsylifelinks.com
EpilepsyResource.net: http://www.epilepsyresource.net/Epilepsy_Information.html
Epilepsy Therapy Project: http://www.epilepsy.com/101/101_epilepsy?gclid=CNOAzKiC2q0CFUPd4AodfRdYlw
FACES: http://faces.med.nyu.edu/
Family Voices of California: http://www.familyvoicesofca.org/
Hope for Hypothalamic Hamartomas: http://hopeforhh.org/
International Dravet Epilepsy Action League: http://www.dravet.org or
International Bureau for Epilepsy: www.ibe-epilepsy.org
International League Against Epilepsy: http://www.ilae.org/Visitors/Centre/Index.cfm
Intractable Childhood Epilepsy Alliance: http://www.ice-epilepsy.org/
Lennox-Gastaut Syndrome Foundation: www.lgsfoundation.org or info@lgsfoundation.org
Live Beyond Epilepsy: http://www.livebeyondepilepsy.com/resources
Living Well With Epilepsy: http://livingwellwithepilepsy.com/
My Epilepsy Diary: http://www.epilepsy.com/seizurediary
National Association of Epilepsy Centers: http://www.naec-epilepsy.org/default.htm
Seizure Tracker: www.seizuretracker.com
SEN Teacher Resources: http://www.senteacher.org/Condition/7/Epilepsy.xhtml
US Veterans Affairs: http://www.epilepsy.va.gov/
UnitedHealthcare Children's Foundation (UHCCF) - medical grants available to help improve access to medical services and items not covered, or not fully covered, by a family's current commercial health benefit plan www.uhccf.org