COVID-19 Resources for Epilepsy Clinicians

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The information on this page has been compiled to aid American Epilepsy Society (AES) members—including physicians, advanced practice providers, nurses, allied health professionals, and other medical professionals—in their care of epilepsy patients.

Resources from other organizations represent the expertise and viewpoints of those groups, and AES appreciates the opportunity to make them easy for our members to access.

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Patient Management

Risk

In younger children, the fever that accompanies COVID19 may exacerbate seizures, as might any febrile illness. The main known elevated risk factors related to COVID19 are age, respiratory disease, and other chronic medical conditions not related to epilepsy. As for all, people with epilepsy should adhere to the CDC recommendations for reducing risk of infection.

Healthcare providers should advise patients on strategies to protect themselves from seizure breakthroughs, including:

  • Reviewing the importance of treatment adherence
  • Updating plans for managing breakthrough seizures, and ensuring necessary medications are on hand with expiration dates at least six months away
  • Managing medication supply
    • Initiate prescription refills at least one week before running out of medications for 30-day prescriptions and at least two weeks for 90-day prescriptions
    • Work with pharmacists to synchronize prescription refills of all medications, not just antiseizure medications
    • Determine home delivery options available from their pharmacy to minimize public exposure and prepare for possible limitations on out-of-home activities
    • Accessing patient resources for self-care and mental health management

Medication Continuity

If feasible, providers might consider writing 90-day rather than 30-day supplies of medications. To say current, consult these resources:

Supporting Patient Self-care

Resources available to providers for supporting patient self-care and mental health management include:

Patient Access to Care

Public Health Resources

Credentialing and Quality Reporting

Information for Patients and Families

  • Concerns about Coronavirus (prepared by the Epilepsy Foundation) provides advice for patients with epilepsy and their families
  • Citizens United for Research in Epilepsy (CURE); COVID-19 and Epilepsy, Ask the Experts Live Stream (recorded March 18, 2020)
  • Protecting Medically Complex and/or Immune-suppressed Children with Epilepsy from COVID-19: DEE-P Connections, International Foundation for CDKL5 Research, and Epilepsy Foundation recently held a webinar addressing common concerns related to COVID-19 for families living with Developmental and Epileptic Encephalopathies (DEEs)
  • Tuberous Sclerosis Alliance’s COVID-19 and TSC Resources page for people with tuberous sclerosis complex and their families and loved ones
  • Dup15q Alliance resources for families

Information for Educators and Trainees

Information from Other Medical Organizations