Providing high-quality care can be complex. The following resources are clinical practice tools approved by various committees of the American Epilepsy Society to facilitate high-quality care. For definitions for the development of AES documents such as Practice Tools, Position Statements, Guidelines, Checklists, Quality Indicators, Expert Consensus Statements, and Review Articles, review the Approved Terminology for AES Resource Documents (2012).
Clinical Practice Tools
Information to help clinicians caring for people with epilepsy. Information in the tool is designed to help you do your job, not tell you what to do. These tools are not considered to be 'standard of care' or guidelines.
Psychogenic Non-epileptic Seizures (PNES) are episodic changes in behavior that resemble epileptic seizures but are not associated with abnormal brain electrical discharges. PNES are associated with underlying psychological stressors and are classified as a conversion disorder.
Discussion guides for cognitive and behavioral effects of epilepsy in adults and children/adolescents.
Transition from Pediatric to Adult Care Tools (Planning for independence when independence is unlikely, 2013)
These two practice tools were developed for adolescent epilepsy patients, with a separate version for those with significant developmental disability. The tools are intended for clinicians to use in developing and implementing a process for the successful transition of an adolescent epilepsy patient into adult epilepsy care.
FAQs for Epilepsy Monitoring Units (Reviewed 2013)
Common questions asked by patients, referring clinicians, and family members about the Epilepsy Monitoring Unit (EMU).
Resources for Clinicians
Mental Health Educational Resources for Clinicians
These quick reference resources were developed by the AES Psychosocial Comorbidities and Interprofessional Care Committees to promote screening and education to address mental health symptoms in persons with epilepsy. They were created for clinicians as quick resources for addressing the mental health of epilepsy patients during a routine medical visit.
The Anxiety Information Sheets are brief reference documents outlining the features, causes, diagnosis and treatment approach for anxiety disorders in people with epilepsy. Separate pediatric and adult handouts are available, outlining age-appropriate features and approaches.
The Depression handouts were created as quick reference resource tools for epilepsy healthcare clinicians and cover features of depression, epidemiology, diagnostic considerations, treatments, and resources for persons with epilepsy. There is an adult and a pediatric version of the handout.
Psychogenic Non-epileptic Seizures (PNES) for Mental Health Professionals:
This information sheet is intended to educate mental health providers on the diagnosis, management, and prognosis of PNES. Tips for managing PNES episodes in a mental health office and in daily life are provided, along with additional resources.
It may be beneficial for epilepsy clinicians to share this document with mental health providers upon referral for PNES treatment.
Screening for Psychosocial Comorbidities:
These documents contain quick screening questions for use in routine clinic visits to assess cognition, social problems and mental health. Suggestions for further screening or next steps accompany each question. Separate adult and pediatric screeners provide age-appropriate questions and suggestions for further screening.
- Screening for Psychosocial Comorbidities in Adults with Epilepsy
- Screening for Psychosocial Comorbidities in Children with Epilepsy
The MEW Network conducts research together with community leaders (such as local Epilepsy Foundation affiliates), and shares findings with the epilepsy community. Its goal is to develop and test self-management programs and tools for people with epilepsy and healthcare providers.
AES is a supporting member of the MEW Network.
Evidence-based Epilepsy Self Management programs from the MEW Network include these and more:
- Project UPLIFT is an evidence-based program that prevents or treats depression symptoms in people with epilepsy. The MEW Network offers training for mental health professionals.
- PEARLS (Program to Encourage Active, Rewarding Lives) is a highly effective, science-based program designed to reduce depression and improve quality of life in adults with epilepsy.
Epilepsy Quality Measures (2012)
An overview of the Centers for Medicare and Medicaid Services' (CMS) approval of quality measures for epilepsy.
Physician Discussion Tool (2008)
Annual AES Practice Management Course
Information about Medications that can Affect Epilepsy Management
Medication List that can Provoke Seizures - Epilepsy Therapy Project (2009)
Resources for Persons with Epilepsy
Tips for Seizure Observation and Recording - Epilepsy Therapy Project (2007)
Epilepsy and Women
More information for persons with epilepsy is available through the Epilepsy Foundation.
In addition to these resources, refer to the practice management section of our website.