Sudden Unexpected Death in Epilepsy (SUDEP) is now recognized as the leading cause of mortality associated with epilepsy excluding status epilepticus and underlying etiologies. Despite the importance of the problem and the implications for intervention, SUDEP had not received widespread professional attention in the United States prior to the mid 2000’s.
The general level of awareness and interest in SUDEP has grown as evidenced by the growing numbers of publications, posters/presentations and participation in related special interest groups. In addition, there has been a significant rise in the number of inquiries from clinical and basic scientists as well as from patients and families via advocacy organizations.
Practice guideline - Sudden unexpected death in epilepsy incidence rates and risk factors (2017) Co-developed by American Academy of Neurology and American Epilepsy Society
Epilepsy Currents Reviews & Commentaries related to SUDEP - find them here
Partners Against Mortality in Epilepsy (PAME) Conference Archives
AES Annual Meeting Archived Symposia
- The SUDEP Movement: From Inception to Goal - 14th Judith Hoyer Lecture in Epilepsy (2016)
- Death in Children with Epilepsy — A Different Tragedy Than in Adults (2015)
- The Epidemiology, Pathophysiology & Prevention of SUDEP (2014)
- Discussing SUDEP: If, When How (2012)
- Unraveling SUDEP: Recent Developments (2011)
- Depression, Suicide, and SUDEP: The Hard Discussions (2010)
Archived AES Presentation Recordings
- SUDEP Counseling: Risk Management for Clinicians Webinars (2014) - FREE, registration required
- Nursing 101 Module 1 – Section on SUDEP - FREE
- Epilepsy Education Program – presentation slide deck on Clinical Epilepsy
Find more in the AES professional education resources.
- Is SUDEP Risk Potentially Treatable
- Epilepsy Foundation SUDEP Institute
- Institute of Medicine Report
- Transitions from pediatric epilepsy to adult epilepsy care