SUDEP

Sudden Unexpected Death in Epilepsy (SUDEP) is now recognized as the leading cause of mortality associated with epilepsy excluding status epilepticus and underlying etiologies. Despite the importance of the problem and the implications for intervention, SUDEP had not received widespread professional attention in the United States prior to the mid 2000’s.

The general level of awareness and interest in SUDEP has grown as evidenced by the growing numbers of publications, posters/presentations and participation in related special interest groups. In addition, there has been a significant rise in the number of inquiries from clinical and basic scientists as well as from patients and families via advocacy organizations.

Practice guideline - Sudden unexpected death in epilepsy incidence rates and risk factors (2017) Co-developed by American Academy of Neurology and American Epilepsy Society

Frequently Asked Questions about SUDEP

AES Position Statement on Access to Epilepsy Care

Epilepsy Currents Reviews & Commentaries on SUDEP

 

Partners Against Mortality in Epilepsy (PAME) Conference Archives

 

AES Annual Meeting Archived Symposia

 

Archived Presentation Recordings


Find more in the AES professional education resources.

 

More information