Patient/Family Organizations
Epilepsy Partners & Patient Advocacy Groups
The American Epilepsy Society is a member of Vision 20-20, a cooperative group of consumer, health professional, and advocacy organizations concerned with the broad spectrum of seizure syndromes ad disorders known as the epilepsies. The group's primary interests are improving epilepsy awareness and understanding, and advancing basic and clinical research to prevent, treat and cure this serious medical condition. The following is a list of Vision 20-20 participant organizations:
American Clinical Neurophysiology Society (ACNS)
Center for Disease Control and Prevention (CDC)
Citizens United for Research in Epilepsy (CURE)
Finding a Cure Against Epilepsy and Seizures (FACES)
Health Resources & Services Administration (HRSA)
Hope for Hypothalamic Hamartomas (HH)
International Foundation for CDKL5 Research
International League Against Epilepsy (ILAE)
Intractable Childhood Epilepsy (ICE) Alliance
Lennox-Gastaut Syndrome (LGS) Foundation
National Association of Epilepsy Centers (NAEC)
National Institute of Neurological Disorders and Stroke (NINDS)
Phelen-McDermid Syndrome Foundation (PMSF)
Physician-Parent-Caregivers (PPC)
Polymicrogyria (PMG) Awareness Organization, Inc.