Patient/Family Organizations

Epilepsy Partners & Patient Advocacy Groups
The American Epilepsy Society is a member of Vision 20-20, a cooperative group of consumer, health professional, and advocacy organizations concerned with the broad spectrum of seizure syndromes ad disorders known as the epilepsies. The group's primary interests are improving epilepsy awareness and understanding, and advancing basic and clinical research to prevent, treat and cure this serious medical condition. The following is a list of Vision 20-20 participant organizations:

Aicardi Syndrome Foundation

American Clinical Neurophysiology Society (ACNS)

Anita Kaufman Foundation

Brain Recovery Project

Center for Disease Control and Prevention (CDC)

Charlie Foundation

Citizens United for Research in Epilepsy (CURE)

Danny Did Foundation

Dravet Syndrome Foundation

Dup 15q Alliance

Epilepsy Foundation (EF)

Epilepsy Free

Finding a Cure Against Epilepsy and Seizures (FACES)

Health Resources & Services Administration (HRSA)

Hemispherectomy Foundation

HHV-6 Foundation

Hope for Harper

Hope for Hypothalamic Hamartomas (HH)

International Foundation for CDKL5 Research

International League Against Epilepsy (ILAE)

Intractable Childhood Epilepsy (ICE) Alliance

KCNQ2 Cure Alliance

Lennox-Gastaut Syndrome (LGS) Foundation

My Epilepsy Story

National Association of Epilepsy Centers (NAEC)

National Institute of Neurological Disorders and Stroke (NINDS)

PCDH19 Alliance

Phelen-McDermid Syndrome Foundation (PMSF)

Physician-Parent-Caregivers (PPC)

Polymicrogyria (PMG) Awareness Organization, Inc.

Preventing Teen Tragedy (PTT)

Rare Epilepsy Network

RE Children's Project

Ring14 USA Outreach, Inc.

Social Security Disability Help

Seizure Tracker


Tuberous Sclerosis Alliance

Veterans Administration (VA) Epilepsy Centers of Excellence