Patient/Family Organizations
The Epilepsy Leadership Council (ELC) is a coalition of more than 30 professional societies, patient advocacy organizations, and governmental agencies working together to improve the lives of individuals living with epilepsy.
Click on a member listing to be taken to their website
- Aicardi Syndrome Foundation
- American Clinical Neurophysiology Society
- American Epilepsy Society
- The Anita Kaufmann Foundation
- Batten Disease Support and Research Association
- The Bow Foundation
- The Brain Recovery Project: Childhood Epilepsy Surgery Foundation
- Bridge the Gap SYNGAP Education and Research Foundation
- Centers for Disease Control and Prevention
- Charlie Foundation for Ketogenic Therapies
- Chelsea's Hope Lafora Children Research Fund
- Child Neurology Foundation
- Citizens United for Research in Epilepsy
- CSWS Epilepsy & Landau Kleffner Syndrome (ESES) Foundation
- CUTE Syndrome Foundation
- Danny Did Foundation
- Dravet Syndrome Foundation
- Dup 15q Alliance
- Epilepsy Foundation
- Families SCN2a Foundation
- Finding A Cure Against Epilepsy and Seizures
- HHV-6 Foundation
- Hemispherectomy Foundation
- Hope4Harper
- Hope for Hypothalamic Hamartomas
- Hope for ULD
- International Foundation for CDKL5 Research
- International League Against Epilepsy
- Jack Pribaz Foundation (KCNq2)
- KCNQ2 Cure Alliance
- Lennox-Gastaut Syndrome (LGS) Foundation
- Mickie's Miracles
- My Epilepsy Story
- National Association of Epilepsy Centers
- National Institute of Neurological Disorders and Stroke
- NORSE Institute
- PCDH19 Alliance
- Phalen-McDermid Syndrome Foundation
- Project 8P
- Ring14 USA Outreach, Inc.
- SLC6A1 Connect
- Seizure Tracker
- Syngap Research Fund
- TESS Research Foundation
- Tuberous Sclerosis Alliance
- Veterans’ Health Administration Epilepsy Centers of Excellence
- Wishes for Elliott