Patient/Family Organizations

The Epilepsy Leadership Council (ELC) is a coalition of more than 30 professional societies, patient advocacy organizations, and governmental agencies working together to improve the lives of individuals living with epilepsy.

Click on a member listing to be taken to their website:

• Aicardi Syndrome Foundation

• American Clinical Neurophysiology Society (ACNS)

• American Epilepsy Society (AES)

• Batten Disease Support and Research Association

• Centers for Disease Control and Prevention (CDC)

• Chelsea's Hope Lafora Children Research Fund

• Child Neurology Foundation

• Citizens United for Research in Epilepsy (CURE)

• CSWS Epilepsy & Landau Kleffner Syndrome (ESES) Foundation

• Danny Did Foundation

• Dravet Syndrome Foundation

• Dup 15q Alliance

• Epilepsy Foundation (EF)

• Finding A Cure Against Epilepsy and Seizures (FACES)

• Hope4Harper

• Hope for Hypothalamic Hamartomas (HH)